Bone cancer in children

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Advocate Children’s Hospital provides comprehensive care for childhood bone cancer. Our pediatric cancer team focuses on minimizing the effects that bone cancer and its treatments have on children.

Our doctors use the latest treatments, including proton therapy and limb-sparing surgery. Your child receives extensive support during and after treatment, boosting their confidence as they move into adulthood.

Advocate Children’s approach to childhood cancer care

Our expert cancer care team works with you and your child to find the best treatment and greatest chance for a cure. Your child can receive the latest treatments at our cancer centers, avoiding long drives into the city and time spent in large hospitals.

During your time here, we get to know your whole family, with each appointment taking place in a comforting environment. Our social workers carefully organize appointments, bringing together the team you require and not keeping you longer than needed. On-call nurses are available 24/7 for questions and concerns.

About childhood bone cancers

While many cancers spread to the bones from other parts of the body, primary bone cancers start in the bones. These bone cancers are fairly uncommon among pediatric cancers but also highly treatable.

Our specialized pediatric cancer center provides the expertise your child needs. We treat all bone cancers, including the 2 most common types, osteosarcoma and the Ewing family of tumors.

This cancer is more common in teens and affects the ends of leg or arm bones, where the bones grow quickly. The bones near the knees and shoulders are most frequently affected.

Teens with bone cancer sometimes notice certain signs and symptoms, including bone pain and swelling. This pain can worsen at night or when teens are active. Our doctors use several diagnostic tools, including biopsies, to diagnose osteosarcoma.

Our doctors use staging systems to evaluate and explain how a tumor is affecting your child, as well as what that means for treatment options. Staging is based on:

  • Grade: Doctors look at cancerous cells under a microscope and estimate how fast they expect the tumor to grow and spread. The grade can be high (fast-growing and spreading), medium or low.
  • Scope: Doctors measure the size and location of the tumor. They look at whether the tumor has stayed in the bone or moved to nearby areas.
  • Metastasis: Doctors look at where the cancer is located within the body. If it has spread to lymph nodes or further parts of the body, it has metastasized.

Our cancer center has the experience to treat this rare form of cancer. Our doctors recommend a treatment plan based on your child’s medical needs, expected side effects and other factors. Osteosarcoma treatments include:

  • Radiation therapy: This therapy uses high-energy rays to destroy cancer cells. We may combine radiation therapy with surgery or use it alone for cancer in places that are hard to reach with surgery.
  • Proton therapy: We are proud to help teens get this new type of radiation therapy here in Chicagoland. Proton therapy is very targeted and causes fewer side effects than other treatments. Read more about proton therapy.
  • Surgery: Orthopedic surgeons handle bone cancer surgery. The surgeon’s goal is to take out all of the cancer while keeping as much healthy tissue as possible.
  • Chemotherapy: Chemotherapy uses drugs, usually injected into a blood vessel, to destroy cancer cells. Learn more about chemotherapy treatment.

Doctors and researchers continue to study these cancers and develop new tests and treatments. These tumors usually start in the early teen years and can affect hip (pelvic) bones, ribs, shoulder blades and the middle of leg bones.

Teens may notice symptoms such as bone pain or swelling. They may also feel unusually tired or lose weight.

Our doctors check the tumor for every aspect and assign it a stage. The staging system accounts for the size of the tumor, whether it has spread to organs, and its likelihood to grow quickly or spread.

For treatment purposes, our doctors look at an Ewing tumor as either:

  • Localized: Remains in the area where it started or within a small area nearby
  • Metastatic: Has spread to farther parts of the body, such as lungs or other bones

Our doctors review your child’s status and work with your family to develop a treatment plan. The plan depends on the cancer’s stage, your child’s age and health, and the expected results of treatment.

Treatment for Ewing tumors includes:

  • Chemotherapy: Administering medications into the blood is the most common treatment. The drugs move through the body and destroy cancer cells. Learn more about chemotherapy.
  • Surgery: Your child may need a special cancer surgery (biopsy) to find out if they have cancer. If a tumor is found, the orthopedic surgeon often tries to go ahead and remove it. Sometimes, though, removal needs to take place later.
  • Radiation therapy: This therapy provides an additional option and sends high-energy rays through the body to destroy cancer cells. Find out more about radiation therapy.

Support for your child and family

When a child has cancer, the whole family is affected. Our Child Life specialists are here to help during your child’s treatment. Read more about our support for your child and family, including:

  • On-call nurses who can answer questions 24/7
  • School assistance during and after treatment
  • Free events and activities for your family

Bone cancer survivorship and transition to adulthood

Survivors of childhood bone cancer have plenty to celebrate. And many also need support as they transition into adulthood. They may have to watch for returning cancer, bone injuries, infections or other complications.

Our Pediatric Oncology Survivors in Transition (P.O.S.T.) program is here to help your child and family transition from cancer treatment. We meet regularly and support your child and family by:

  • Celebrating survivorship
  • Keeping track of follow-up exams and testing
  • Watching for effects of cancer and treatment that may appear later in life

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